Research Requests

APUK receives a large number of requests to publicise research to our members. In order to safeguard our members and to ensure that we only publicise research that is in line with our ethos and in the best interest of our community, we ask that you respond to the questions in the following Google form. Please respond to each question directly and do not instead state: “see consent form” or similar.

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We would like to reiterate that Autistic parents are parents who are Autistic themselves with children of any neurotype. 

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Common reasons why requests are rejected:

 

• Research project is about Autistic children.  Our charity's mission focuses on Autistic adults, who are also parents.  

• Use of deficit based/pathologising language e.g. ASD/ASC (Autism Spectrum Disorder/Condition), 'symptoms', functioning labels.  Our charity supports the Neurodiversity paradigm and we do not see autism as a disorder.

• Use of person first language i.e. ‘person with autism'.  We only share research that uses identity first language i.e. ‘Autistic person’ as preferred by the majority of Autistic adults.

• Autistic people have not been included in the design of the project.  This is due to historical epistemic injustice in autism research.  We believe in the principle of ‘nothing about us without us’.

• Self-diagnosed Autistic people not included - unless the study is specifically about people's experiences of the formal assessment & diagnosis process.  We feel that self diagnosis is valid.